Good morning check out my [DATE] #chronicillnessVOICE DAILY Newsletter via @Nuzzel  [URL]
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Hello & welcome, I hope you enjoy today's selection.
Please remember some stories may require subscription, some may be commercial ie event promotions, others are not to replace the advice of your own GP's
Wishing you wellness as always
In another blistering press conference on Monday, President Trump indicated he was keen to reopen the US economy in weeks, not months, even as the death toll from the coronavirus continues to mount. “Our country wasn't built to be shut down…
National Institutes of Health (NIH)
– Mar 24, 5:08 AM
NIH-funded test seeks to increase participation of individuals with Fragile X in clinical trials. Researchers have developed a test to measure the expressive language skills of people with Fragile X syndrome, a genetic disorder that may result in…
FibroFluttersFunding was provided by NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and National Center for Advancing Translational Sciences.
The “Essential Guide: What Most Medical Device Companies Face and How to Succeed” has been authored by third-party expert Alethea Wieland, Founder and President of Clinical Research Strategies. Wieland shares her first-hand view of…
Now we need your help. If you are an adult or child with a rheumatic, autoimmune or autoinflammatory condition, such as rheumatoid arthritis (RA), juvenile idiopathic arthritis (JIA), systemic lupus erythematosus (SLE), cryopyrin-associated…
FibroFlutters'This will help healthcare professionals across the world in treating people with COVID-19, especially those who have a medical condition.'
This site of resources for coping and emotional health has been developed for the benefit of our whole community - UCSF staff, faculty, students, patients, providers, Bay Area families, and the public at large. Please share it with others. This is…
FibroFlutters'Protecting your own wellness will also help those around you. Together we can become a more stress resilient community during this difficult period. Stay well and safe.
With warm regards,
UCSF Department of Psychiatry'
As originally posted in Cream Crackered Blog, t he first few days of quarantine can feel like a vacation. Finally you have an excuse to say no, stay home, and watch reality TV, and there's nothing anybody can say about it. Freedom to just relax.
FibroFluttersThe rare disease community has some experts for the quarantine living experience because many have been living it for years. I’ve read through some of our in-home experts advice who have put together their own guidance for adapting to living life indoors.
FiercePharma and FierceHealthcare bring you a week of virtual updates and expert panels discussing the coronavirus. We'll assemble a series of experts to discuss industry's role in preparing for a pandemic and what steps can be taken to mitigate…
FibroFluttersTuesday, March 31, 3:00pm-4:00pm ET -
Challenge Accepted: Biopharma puts COVID-19 in its pipeline | Wednesday, April 1, 3:00pm-4:00pm ET -
COVID-19 threatens pharma’s global supply chain. What next? | Thermo Fisher Scientific