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FibroFlutters' Newsletter Archive

#chronicillnessVOICE #health related newsletter for everyone #notjustpatients -

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Good morning check out my [DATE] #chronicillnessVOICE DAILY Newsletter via @Nuzzel [] [URL] #notjustpatients #healthnews #patient #health #medical #research #pharma #advocates
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Daily Commentary
Hello + welcome to today's issue featuring a fabulous blog post from Kathleen about her first ever dog show competition as a disabled handler, great real life read! Plus, more articles to keep you going Wishing you wellness + great weekend Carole
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Our First Dog Show - Competing in Rally Obedience as a Handler with a Disability
The Invincible Summer – Kathleen Elizabeth – Nov 22, 2019, 4:37 PM

Since the summer, time has seemed to fly by especially fast! We had a pretty good summer! We spent lots of time sitting outside in the sun, going for walks with River, heading to the beach, and working with my boy. Training with River was a big…

Image not available FibroFlutters One thing that really made such a big difference for me was how supportive and encouraging everyone was, from the judges to people helping out to other handlers & their friends and families.
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Compound nestled in parasitic worm offers promise as antibiotic against obstinate superbugs
Endpoints News

A com­pound domi­ciled in­side the gut of a soil-dwelling par­a­sitic worm could be the chief in­gre­di­ent for a po­tent hu­man an­tibi­ot­ic de­signed to fight a class of stub­born…

Image not available FibroFlutters The compound, darobactin, is a product of Photorhabdus bacteria that was discovered residing within the gut of a nematode.
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New WHO report: Ignoring the health of people in prisons now comes at a high cost for society later
WHO

21 November 2019, Copenhagen, Denmark The “WHO status report on prison health in the WHO European Region” presents an analysis of data collected on the health status of people in prison and prison health systems for 39 countries in…

Image not available FibroFlutters The report reveals that the general state of monitoring and surveillance systems for health in prisons is poor. This affects the development of evidence-based policies that effectively target the needs of the prison population.
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Psychologists Explain How To Stop Overthinking Everything
Kaizen Habits – Thomas Oppong – Nov 16, 2019, 3:39 AM

Thinking about something in endless circles — is exhausting. While everyone overthinks a few things once in a while, chronic over-thinkers spend most of their waking time… Welcome to a place where words matter. On Medium, smart voices…

Image not available FibroFlutters Overthinking can take many forms: endlessly deliberating when making a decision (and then questioning the decision), attempting to read minds, trying to predict the future, reading into the smallest of details, etc.
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Science underestimated dangerous effects of sleep deprivation
Neuroscience News – Nov 22, 2019, 11:25 AM

Summary: Findings debunk the common theory that attention is the only cognitive function affected by sleep deprivation. Lack of sleep also hinders a person's ability to complete activities that require following multiple steps. Source: Michigan…

Image not available FibroFlutters Michigan State University’s Sleep and Learning Lab has conducted one of the largest sleep studies to date, revealing that sleep deprivation affects us much more than prior theories have suggested.
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PRESS RELEASE: How to improve drug-treatment information-an evidence-based guide on what patients expect from pharma
createsend1.com

~ Contact: Alex Wyke ~ Tel: +44-(0)7960-855-019 ~ Email: report@patient-view.com PRESS EMBARGO: London, October 15th, 2019 6AM GMT For sample pages go to report CONTENTS (see below) “A significant proportion of patients communicate only in a…

Image not available FibroFlutters IMPROVING DRUG-TREATMENT INFORMATION An evidence-based guide for pharma on what patients expect from pharma as defined by 2,000 patient groups (published October 2019)
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Setting the standard for public involvement
Health and Care Research Wales

The final UK Standards for Public Involvement, which aim to improve the quality and consistency of public involvement in research, are released today. Health and Care Research Wales formed a key part of a UK-wide partnership to develop the…

Image not available FibroFlutters The Standards set out six areas for developing good quality public involvement. They encourage approaches and behaviours that are the hallmark of good public involvement such as flexibility, sharing and learning and respect for each other.
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Medical cannabis for chronic pain: NICE block NHS prescriptions
BLB Chronic Pain – Nov 21, 2019, 4:34 PM

As we reported at the time, on 1 November 2018, cannabis-derived medical products were placed in Schedule 2 of the Misuse of Drugs Regulations 2001. On the face of it, that provided official recognition in the UK that these products have a…

Image not available FibroFlutters NICE say that people with chronic pain shouldn't be prescribed drugs containing THC (delta-9-tetrahydrocannabinol), the main psychoactive ingredient in cannabis. Amounting to a blanket ban on NHS-prescribed medical cannabis for chronic pain.
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The Patient Advocate Grind | How To Manage that Overwhelmed Feeling of Health Advocacy
meganstarshak.com – Aug 5, 2019, 3:58 PM

Patient advocacy definitely feels like a second job, much of the time. (or full time job. with overtime.) Advocates and patient leaders who have stepped up to this role are working as marketing and communications professionals, whether the realize…

Image not available FibroFlutters Without realizing it, patients are masters at finding and filling information gaps. Without realizing it, they are growing into marketers, and creating their own personal and patient brands.
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Accelerating Medicines Partnership launches data knowledge portal for Parkinson's disease
National Institutes of Health (NIH) – Nov 22, 2019, 7:19 AM

The Accelerating Medicines Partnership (AMP) program for Parkinson's disease (PD) has launched a data portal to provide de-identified information collected from 4,298 PD patients and healthy controls to researchers working to develop effective…

Image not available FibroFlutters '“One important part of this platform is that, in addition to providing a place for storing complex data, we are also providing the tools to analyze that data within the platform itself,” said Debra Babcock, M.D., Ph.D...'
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